Contact your state officials. Share your story and you may just save a life!
Dear [title] [last name],
RE: CHILDREN'S CARDIAC SAFETY ACT
I am reaching out to you to introduce the Children's Cardiac Safety Act, which is proposed legislation to help identify children and families at risk from undiagnosed cardiac disease.
The Children’s Cardiac Safety Act aims to ensure the cardiovascular health needs of all children and those of student-athletes are met by improving the ability of the healthcare providers to identify children and their families at risk for cardiac disorders both genetic and congenital, in time to act.
Our goal is to create change through state-level legislative efforts to include cardiac screening questions in “well-child” exams and “student-athlete pre-participation physicals”, provide training to healthcare professionals, improve student-athlete screenings and provide educational materials to student-athletes/parents about conditions linked to sudden cardiac arrest both genetic and acquired.
The total population estimated to be impacted by at least one of the 10 most common cardiac diseases in the United States ranges between 3.5 million – 10.5 million people. Each year thousands of people suffer from undiagnosed cardiac conditions with symptoms that range from mild to catastrophic including sudden cardiac arrest and death.
As your constituent, I ask you to schedule an appointment with the Hypertrophic Cardiomyopathy Association so that we can provide details, and answer any questions about this important piece of proposed legislation.
To schedule an appointment at a time that is convenient for you, please call Julie Russo (HCMA Legislative Advocacy Lead) at (973)983-7429 to schedule an appointment.
